SP-CERN

Demographics

Participant enrollment and family relationship record

[site]Site of Enrollment

[new_site_name]New site name

[new_site_num]New site numeric code

Two digits, e.g. 11

[new_site_prefix]New site 3-letter code

Exactly 3 letters

[fam_num]What is the family number?

Min: 000 Max: 999

[first_proband]Is this participant the first in their family to be enrolled in SP-CERN?

Yes1 No2

shown when first_proband = No

[gen]Generation

Same Generation as first proband0 Parent Generation of first proband1 Grandparent Generation of first proband2 Great Grandparent Generation of first proband3 Generation of first proband's children9

shown when gen = Parent Generation

[parent]Is this a biological Parent?

Mother1200 Father1101 Maternal Aunt1202 Maternal Uncle1201 Paternal Aunt1100 Paternal Uncle1103

shown when gen = Same Generation

[sibling]Is this a biological sibling or half sibling?

Sister02 Brother03 Cousin0

shown when first_proband = No AND gen = Children's Generation

[is_child]Who's child?

Child of first proband's brother1 Child of first proband's sister2 Child of paternal cousin3 Child of maternal cousin4 Child of first proband0

shown for cousins, grandparents, great-grandparents, or mother/father

[fam_side]What side of the first proband's family is this participant from?

Maternal2 Paternal1

shown for first proband, grandparents, great-grandparents, children's gen, or cousins

[sex]Sex

Female0 Male1

shown when first_proband = Yes

[id_proband]Computed Participant ID